The Bleeding Disease : Hemophilia and the Unintended Consequences of Medical Progress /

By the 1970s, a therapeutic revolution, decades in the making, had transformed hemophilia from an obscure hereditary malady into a manageable bleeding disorder. The glory of this achievement was short lived as the same treatments that delivered some normalcy to the lives of persons with hemophilia b...

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Bibliographic Details
Online Access: Full text (MCPHS users only)
Main Author: Pemberton, Stephen Gregory
Format: Electronic eBook
Language:English
Published: Baltimore : Johns Hopkins University Press, 2011
Series:UPCC book collections on Project MUSE.
Subjects:
Local Note:ProQuest Ebook Central

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100 1 |a Pemberton, Stephen Gregory. 
245 1 4 |a The Bleeding Disease :  |b Hemophilia and the Unintended Consequences of Medical Progress /  |c Stephen Pemberton. 
260 |a Baltimore :  |b Johns Hopkins University Press,  |c 2011. 
300 |a 1 online resource (xviii, 377 pages) :  |b illustrations 
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504 |a Includes bibliographical references (pages 305-363) and index. 
505 0 |a Introduction : hemophilia as pathology of progress -- The emergence of the hemophilia concept -- The scientist, the bleeder, and the laboratory -- Vital factors in the making of a masculine world -- Normality within limits -- The hemophiliac's passport to freedom -- Autonomy and other imperatives of the health consumer -- The mismanagement of hemophilia and AIDS -- Conclusion : the governance of clinical progress in a global age. 
520 |a By the 1970s, a therapeutic revolution, decades in the making, had transformed hemophilia from an obscure hereditary malady into a manageable bleeding disorder. The glory of this achievement was short lived as the same treatments that delivered some normalcy to the lives of persons with hemophilia brought unexpected fatal results in the 1980s when people with the disease contracted HIV-AIDS and Hepatitis C in staggering numbers. Pemberton recounts the promising and perilous history of American medical and social efforts to manage hemophilia in the twentieth century. --From publisher description. 
546 |a English. 
588 0 |a Print version record. 
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650 0 |a Hemophilia  |z United States  |x History. 
650 0 |a Blood  |x Transfusion. 
650 1 2 |a Hemophilia A  |x history 
650 1 2 |a Hemophilia A  |x therapy 
650 2 2 |a Liver Transplantation  |x trends 
650 2 2 |a History, 20th Century 
650 2 2 |a HIV Infections  |x transmission 
650 2 2 |a Blood Transfusion 
651 2 |a United States 
776 0 8 |i Print version:  |a Pemberton, Stephen Gregory.  |t Bleeding Disease : Hemophilia and the Unintended Consequences of Medical Progress.  |d Baltimore : Johns Hopkins University Press, ©2014  |z 9781421401157 
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