The Bleeding Disease : Hemophilia and the Unintended Consequences of Medical Progress

The Bleeding Disease : Hemophilia and the Unintended Consequences of Medical Progress /

By the 1970s, a therapeutic revolution, decades in the making, had transformed hemophilia from an obscure hereditary malady into a manageable bleeding disorder. The glory of this achievement was short lived as the same treatments that delivered some normalcy to the lives of persons with hemophilia b...

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Bibliographic Details
Online Access: Full text (MCPHS users only)
Main Author: Pemberton, Stephen Gregory
Format: Electronic eBook
Language:English
Published: Baltimore : Johns Hopkins University Press, 2011
Series:UPCC book collections on Project MUSE.
Subjects:
Hemophilia > United States > History.
Blood > Transfusion.
Hemophilia A > history
Hemophilia A > therapy
Liver Transplantation > trends
History, 20th Century
HIV Infections > transmission
Blood Transfusion
United States
Local Note:ProQuest Ebook Central
Table of Contents:
  • Introduction : hemophilia as pathology of progress
  • The emergence of the hemophilia concept
  • The scientist, the bleeder, and the laboratory
  • Vital factors in the making of a masculine world
  • Normality within limits
  • The hemophiliac's passport to freedom
  • Autonomy and other imperatives of the health consumer
  • The mismanagement of hemophilia and AIDS
  • Conclusion : the governance of clinical progress in a global age.

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