Testing baby : the transformation of newborn screening, parenting, and policy making /

Testing Baby is the first book to draw on parents' experiences with newborn screening in order to examine its far-reaching sociological consequences. Newborn screening occurs almost always without parents' consent and often without their knowledge or understanding, yet it has the power to...

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Bibliographic Details
Online Access: Full text (MCPHS users only)
Main Author: Grob, Rachel, 1966-
Format: Electronic eBook
Language:English
Published: New Brunswick, NJ : Rutgers University Press, 2011
Series:Critical issues in health and medicine.
Subjects:
Local Note:ProQuest Ebook Central
Description
Summary:Testing Baby is the first book to draw on parents' experiences with newborn screening in order to examine its far-reaching sociological consequences. Newborn screening occurs almost always without parents' consent and often without their knowledge or understanding, yet it has the power to alter such things as family dynamics at the household level, the context of parenting, the way we manage disease identity, and how parents' interests are understood and solicited in policy debates. Rachel Grob's cautionary tale explores the powerful ways that parents' narratives.
Physical Description:1 online resource (xi, 272 pages)
Format:Master and use copy. Digital master created according to Benchmark for Faithful Digital Reproductions of Monographs and Serials, Version 1. Digital Library Federation, December 2002.
Bibliography:Includes bibliographical references and index.
ISBN:9780813552026
0813552028
1280492392
9781280492396
9786613587626
6613587621
Language:English.
Reproduction Note:Electronic reproduction.
Action Note:digitized