Testing baby : the transformation of newborn screening, parenting, and policy making /
Testing Baby is the first book to draw on parents' experiences with newborn screening in order to examine its far-reaching sociological consequences. Newborn screening occurs almost always without parents' consent and often without their knowledge or understanding, yet it has the power to...
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Full text (MCPHS users only) |
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| Main Author: | |
| Format: | Electronic eBook |
| Language: | English |
| Published: |
New Brunswick, NJ :
Rutgers University Press,
2011
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| Series: | Critical issues in health and medicine.
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| Subjects: | |
| Local Note: | ProQuest Ebook Central |
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| 100 | 1 | |a Grob, Rachel, |d 1966- | |
| 245 | 1 | 0 | |a Testing baby : |b the transformation of newborn screening, parenting, and policy making / |c Rachel Grob. |
| 264 | 1 | |a New Brunswick, NJ : |b Rutgers University Press, |c [2011] | |
| 264 | 4 | |c ©2011 | |
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| 490 | 1 | |a Critical issues in health and medicine | |
| 504 | |a Includes bibliographical references and index. | ||
| 505 | 0 | |a Saving babies, changing lives -- Diagnostic odysseys, old and new : how newborn screening transforms parents, encounters with disease -- Specters in the room : parenting in the shadow of cystic fibrosis -- Encounters with expertise : parents and health care professionals -- A house on fire : how private experiences ignite public voices -- Brave new worlds : can they be seen in a drop of blood? | |
| 506 | |3 Use copy |f Restrictions unspecified |2 star |5 MiAaHDL | ||
| 520 | |a Testing Baby is the first book to draw on parents' experiences with newborn screening in order to examine its far-reaching sociological consequences. Newborn screening occurs almost always without parents' consent and often without their knowledge or understanding, yet it has the power to alter such things as family dynamics at the household level, the context of parenting, the way we manage disease identity, and how parents' interests are understood and solicited in policy debates. Rachel Grob's cautionary tale explores the powerful ways that parents' narratives. | ||
| 533 | |a Electronic reproduction. |b [Place of publication not identified] : |c HathiTrust Digital Library, |d 2011. |5 MiAaHDL | ||
| 538 | |a Master and use copy. Digital master created according to Benchmark for Faithful Digital Reproductions of Monographs and Serials, Version 1. Digital Library Federation, December 2002. |u http://purl.oclc.org/DLF/benchrepro0212 |5 MiAaHDL | ||
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| 650 | 0 | |a Newborn infants |x Diseases |x Diagnosis. | |
| 650 | 0 | |a Medical screening. | |
| 650 | 0 | |a Newborn screening. | |
| 650 | 0 | |a Newborn infants. | |
| 650 | 0 | |a Parents. | |
| 650 | 0 | |a Medical policy. | |
| 650 | 1 | 2 | |a Neonatal Screening |
| 650 | 1 | 2 | |a Infant, Newborn |
| 650 | 2 | 2 | |a Parents |
| 650 | 2 | 2 | |a Health Policy |
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| 650 | 7 | |a parents. |2 aat | |
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